As if actually getting a chronic illness (or like in my case, multiple) isn’t bad enough, there are things that make getting sick even worse than it has to be. No one is prepared to get sick, and no one is prepared for the absolute devastation of losing the life
Before getting chronically ill, I had never heard of The Spoon Theory. I used to make jewelry and I had seen spoon jewelry associated with chronic illness, but I had no idea how the two were connected. After diagnosis, I had seen people calling themselves “Spoonies” in the chronic illness
You’ve been having debilitating symptoms for a while now, and either someone told you about dysautonomia and POTS, you’ve come across it in your Google searching, or your doctor has just diagnosed you with it. Your first question may be what to do next. That’s an important question, and one
When I left my job in June of 2014, I had no intentions of ever going on social security disability. To me, disability meant a failure on my part– a failure at living the way we were told we had to live, a failure at living the life I always
I’m writing this post with slight hesitation, because I’ve tried to write about this in some of the POTS and Dysautonomia support groups I’m in on Facebook, only to have them taken down by moderators. I was told that I couldn’t mention doctor’s names or clinics along with a negative
