People who suffer with chronic illnesses have so much to deal with on a daily basis, and on top of it all, so many people don’t even believe us when we say we’re sick. On top of everything, trolling exists, and people think it’s necessary to bring down people who
A couple of weeks ago, a medical journal was published that has absolutely devastated the POTS community, myself included. Not only was it completely inflammatory, but it was extra personal to me. You see, one of the doctors who published this article (I think all the doctors who are listed
Something I’ve thought about recently is the importance of distinguishing the difference between sympathy and empathy, and how it relates to chronic illness. Once you understand the difference between the two, you’ll understand why we’re looking for your empathy, not your sympathy.
Most people don’t really think about what each
I’ve recently come to the realization that I tend to downplay my symptoms and how bad I’m actually feeling to my doctors. This is something I didn’t even realize I did, and once I realized, it was both a shock to myself and an eye-opening observation. After years of being
I’m writing this post with slight hesitation, because I’ve tried to write about this in some of the POTS and Dysautonomia support groups I’m in on Facebook, only to have them taken down by moderators. I was told that I couldn’t mention doctor’s names or clinics along with a negative